Jessica Nelson has revealed that her twin girls may never be able to walk because they have been given a severe genetic condition.
Jesy Nelson has shared a heartbreaking photo of her eight month old twins smiling with breathing tubes as she shared the reality of the day to day life.
The Little Mix star said she has become a ‘nurse’ to girls Ocean and Story as she revealed they have been diagnosed with spinal muscular atrophy.
Jesy, 34, said she had undergone ‘the most gruelling three or four months’ of her life after her girls were given the devastating health news. The genetic neuromuscular disease causes progressive muscle weakness and wasting due to motor neuron loss. In a tearful Instagram video, the singer said the condition ‘affects every muscle in the body down to legs, arms, breathing and swallowing’ and said she’s been told her daughters may never be able to walk.
The actress claimed that she has become a “nurse” for the girls and that she is “doing things that no mother should have to do,” such as helping them use breathing devices.
Her partner Zion revealed a brand-new photo of the girls after sharing her video, declaring that they were “smoking through the challenges.” The musician remarked, “Daddy loves you so much.
After three and four months of agonizing appointments, Jesy revealed to the media that the girls have now been diagnosed with SMA Type 1 – a severe muscular condition.
There is no known cure for SMA, according to Jesy, who described the twins’ treatment plan from Great Ormond Street Hospital in London as “a very quick process because time is of of essence with this disease.”
She referred to the girls as receiving “urgent care,” which I am so appreciative of because they would not survive without it.
I feel like I have to become a nurse because I have to put them on breathing machines and do things that no mothers should have to do with their children because there have been endless hospital appointments.
The most heartbreaking time of my life has been spent with Jesy, she said. My entire life has done a 180, in my opinion. I almost feel as though I’m grieving for my children’s lives.
“I firmly believe that my girls will overcome any obstacles with the right assistance and carry out impossible tasks.”
The singer experienced a series of complications during her pregnancy, including twin-to-twin transfusion syndrome (TTTS), which she documented on social media.
According to the NHS, TTTS affects 10 to 15% of identical twins who share a placenta and “can have serious consequences”.
Before giving birth to the twins prematurely at 31 weeks on May 15, Jesy underwent the emergency procedure and spent 10 weeks in the hospital.
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Source: Mirror
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