Jesy Nelson’s twins’ heartbreaking condition SMA that means they may never walk

Need to be aware

The Little Mix star explained that Spinal Muscular Atrophy has been identified in her children.

Everything you need to know about the heartbreaking condition SMA in Jesy Nelson’s twins…

1. Jesy Nelson, the ex-Little Mix star, has revealed that her twin daughters have a rare genetic condition that means they “probably never will walk.”
2. SMA causes delayed motor skills, breathing difficulties, and floppiness in the limbs. Every muscle in the body, from the legs to the arms, to breathing to swallowing, was said by her.
3. Jesy continued, “They have since had treatment, and I’m so grateful for it,” saying, “They will die if they don’t have it.”
4. Although there is no known treatment or cure for SMA, there are options for assisting people in achieving the best possible quality of life.
5. If one in 40 people has the disorder, which causes SMA, their parents may have a defective gene that causes the condition.
6. Prior to 2019, SMA type 1 babies frequently couldn’t reach their second birthday, and type 2 babies had never been able to walk, needing to have multiple surgeries and suffer from respiratory infections. Treatments that stop the disease in its tracks have been approved in the last five years.
7. Despite these approved treatments, testing must begin within a person’s first few weeks or even days. SMA testing is not done on British children because many times it is discovered too late. Campaigners and senior experts are urging that to change.
8. In Scotland, a two-year pilot program is scheduled to begin testing all babies in 2026. SMA UK’s Portia Thorman believes that introducing screening throughout the UK would be “ethically wrong.” You can be filled with hope, she says, “I believe you are now facing a diagnosis.”

After receiving a devastating diagnosis, Jesy Nelson told her twins that they would never walk again.

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