Jesy Nelson’s fiance Zion Foster has written a heart wrenching tribute to his baby girls following their devastating health diagnosis – admitting that their daughters ‘already know how to fight’
Jesy Nelson’s fiance Zion Foster has written a heartbreaking tribute to his baby twins following their SMA diagnosis, confessing “I hear your strength every time you cry.”
After a challenging pregnancy, Zion and Jesy were overjoyed to welcome twin baby daughters Ocean Jade and Story Monroe last May. But that joy swiftly turned to heartache, when she revealed at the beginning of January that her babies had been diagnosed with Type 1 Spinal Muscular Atrophy (SMA).
Sadly, it the most severe form of a rare muscle wasting disease, which only some 50 children in the UK are born with each year and it means, devastatingly, their adorable twins may never be able to walk.
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Now Zion, 27, who like former Little Mix star Jesy is also a musician, has shared a beautiful poem written about his eight-month-old girls. He said: “They said it’s unlikely you’ll walk, you may not be able to talk, probably won’t be able to hold your head up, that’s what me and Jesy heard – SMA Type 1. And it became so clear, doctors only go near what they can measure, so what’s certain?
“I watch your smiles like sunsets, not promised, but real. I listen to you babble the sweetest melodies, in the moment it makes me wonder, if I keep telling you who I want you to be, what I want you to do, what I expect from you, am I loving you, or am I loving my fear?
“If I take you for how God knitted you, just as you are, nothing removed, am I loving you? Am I accepting you?”
Zion added: “Story, is your heart okay? Ocean, how’s your mind? I hear strength in your lungs every time you cry, two little warrior girls who already know how to fight.
“Honestly, my worry isn’t the milestones, isn’t forcing life to live a different way. My worry is quieter than that, deeper. It’s about accepting you, loving you for who you are right now, without conditions. No matter what tomorrow brings, and no matter what yesterday was.”
Last week, a tearful Jesy, 34, appeared on This Morning, and opened up to Ben Shephard and Cat Deeley about their unexpected new life, saying, “I just want to be their mum. I don’t want to be a nurse. It’s hard”. She added emotionally, “They’ve had their treatment, thank God. A one-off infusion. That puts the gene back in their body that they don’t have. It stops the muscles still working from dying. Any that have gone, you can’t regain them back.
“Now it’s down to constant physio. We’ve been told they’ll probably never walk or regain their neck strength. They’ll probably be in wheelchairs.”
But like Zion, Jesy is trying to remain positive – and confessed she was trying to “manifest” the best possible outcome for her girls, who must attend Great Ormond Street Hospital twice a week for treatment. She said: “They’re still smiling, they’re still happy and have each other. That’s the main thing I’m so grateful for because they could be doing this by themselves,” she added. “All I can do is try my best to be there for them and give them positive energy, keep doing physio.
“My whole life has completely changed. If you came to my house it looks like a hospital. My whole hallway is filled with medical stuff. It’s crazy how you can go from one extreme to the next.
The twin’s condition, spinal muscular atrophy, is a disease which removes a person’s strength and causes problems by disrupting the motor nerve cells in the spinal cord. It can ultimately cause a person to lose the ability to walk, eat and breathe.
Source: Mirror
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