She was informed by Jesy Nelson that her twin girls have the rare genetic condition Spinal Muscular Atrophy, which has caused her to lose ability to walk. Ocean Jade and Story Monroe Nelson-Foster, both 34, were welcomed in May by the singer and her musician fiance, Zion Foster.
The Little Mix singer paused to stop herself from crying multiple times on Instagram today.
SMA weakens every muscle in the body, causing symptoms like sluggishness, breathing and swallowing difficulties, and motor skills that are delayed. Jessica claimed that she has had to do “things no mother should do” and is now working as a full-time nurse for her daughters. ‘
In the self-filmed clip, Jesy sobbed, “I am grieving a life I thought I was going to have with my children.” After her mother discovered that the twins weren’t moving as much as they should for their age, the singer first visited her GP.
Jesy shared the diagnosis with you guys on Instagram, saying, “I wanted to come on here to share some news. With this video, I’m not exactly sure where to begin.
My mother noticed that the girls’ legs weren’t moving as much as they should.
At the time, Jesy said, “It wasn’t really a concern for me.” Your babies are premature, so don’t compare your babies to other babies, I was told right away when I left the NICU. They simply accept them as they are, despite not achieving the same goals. ‘
It didn’t really ring the alarm, I thought. I was instructed not to compare them to my first child because they are my first. The girls’ health care providers reaffirmed that everything was alright and that the girls were healthy.
Later, there were some indications that the girls were having trouble consuming enough food. We would take them to the doctor and say, “Our babies are not feeding as frequently as they should. They said it was fine and to give it a restraint. “
The girls have been given the most exhausting three to four months and interminable appointments, according to Jesy, who continued, “Long story short, they have been given the diagnosis of a severe disease called SMA type one.” Every muscle in the body, from the legs to the arms to swallowing, is affected by spinal muscular atrophy.
It eventually causes the body’s muscles to “die.” Your baby’s life expectancy won’t exceed two if it isn’t treated in time.
It was a very quick procedure once the girls were treated. With this illness, time is of the essence.
We were told that the girls at Great Ormond Street would never be able to walk when they were surveyed. They’d probably never be able to use their necks again. They will have disabilities, Jesy predicted.
The best thing we can do at this time is to treat them and hope for the best,” she continued. “I’m so grateful that the girls received the care they needed.” They would perish without it if they didn’t have it. “
Although there is no known cure for (SMA), there are options for treatment and support to ensure that people have the best possible quality of life.
Jesy described how her life has changed in the past four months as “I am grieving a life I believed I was going to have with my kids.”
“It has become my second home,” I said. Within two weeks of receiving the diagnosis, I feel like I must start nursing. Nothing a mother should have to do to their child should have to do.
Because the last three months have been my life’s most heartbreaking experience, I made this video. “
Jesy cried out, “I know I have to be grateful.” They are still present at the end of the day, which is their main goal. They have received treatment.
My girls will defy the law, in my opinion, and they will fight this with the right assistance. “
After her girls were diagnosed with twin-to-twin transfusion syndrome (TTTS), Jesy had to have surgery to mend her complicated pregnancy.
The NHS notes that TTTS has “serious consequences” for 10 to 15% of identical twins who share a placenta.
One twin has a larger blood volume than the other, which is caused by an abnormally connected blood vessel in the placenta, which causes an imbalanced blood flow between the two, leaving one with a larger blood volume.
Before giving birth to the twins prematurely at 31 weeks on May 15, the singer underwent the emergency procedure and spent 10 weeks in the hospital.
Jesy also mentioned that her twins were monochorionic diammiotic (MCDA), meaning they both had separate sacs but shared a single placenta during her pregnancy.
After revealing that she had filmed a six-part documentary about her pregnancy, Jesy made the announcement that she had “written a new chapter in her life.”
For a series that included Amazon Prime, Jessica and Zion documented the highs and lows of their challenging nine months.
Jesy shared the news with her Instagram followers on September 16th, saying, “I’m so excited and proud to finally announce that we’ve been filming our own series for Amazon! Due to how intimate the moment is, we had to decide whether to let the cameras in, but I wanted to tell my story in my own words. As I prepare to become the first mother of our gorgeous baby girls Ocean and Story, we officially opened the doors and I’m really looking forward to letting you all in.
You’ll see all the highs, lows, and rollercoaster of emotions we’ve been going through because it’s been such a high risk pregnancy, I’ll be honest. I’m truly open, say goodbye to the past, and begin this new chapter in my life with you all. I sincerely hope you enjoy it as much as we do.
Zion claimed in a statement to the Mirror that Jesy and Zion had gotten closer because of the turbulent pregnancy before the twins were born.
He continued, “We’ve literally developed a deeper understanding of one another. And I believe we are fully aware of our shared concern for one another.
When you truly, truly understand your relationship and the value of your love, I believe that is when you are at this.
And Jess and I both believe that this has opened our minds to the reality that we are genuinely made for one another. ”
Source: Mirror
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