Jesy Nelson shares adorable video of baby daughter after devastating diagnosis

Jesy Nelson has shared a glimpse of the happy side of motherhood after revealing her twin daughters’ devastating diagnosis earlier this week.

The former Little Mix singer, who gave birth to her twin daughters Ocean and Story in May, revealed in a candid video on Sunday that her daughters had been diagnosed with SMA Type 1. SMA Type 1, or spinal muscular atrophy, is a “rare genetic condition that can cause muscle weakness. It gets worse over time, but there are medicines and other treatments to help manage the symptoms”, the NHS says.

After revealing her daughters’ diagnosis, Jesy was flooded with support from celebrities and fans alike – and later made a brave appearance on This Morning to urge the NHS to add a simple heel prick test to their regular newborn testing to help detect the condition earlier – as the earlier its found and treated, the less severe the symptoms are.

Now, Jesy has shared an adorable video of her playing and laughing with one of her twin daughters days after sharing the devastating news. In the clip shared on her Instagram story, Jesy is seen making funny noises and shaking her head which made her daughter laugh, the singer captioned the post saying: “I’m so in love with her little laugh.”

The tot looked happier than ever while sat in the baby seat as her mum made funny noises and placed gentle kisses on her face.

And while Jesy is making the most of her situation by being upbeat and happy for her daughters, she had recently informed fans that her children have the most severe form of SMA. In the heartbreaking video, fans saw Jesy desperately trying to hold back tears as she said: “I am grieving a life I thought I was going to have with my children.”

The condition creates floppiness in the limbs, trouble breathing and swallowing along with a delay in motor skills. At first Jesy admitted that she hadn’t noticed anything was wrong with her children until her mum recognised that they were not moving as much as they should be for their age.

And this prompted the star to seek the help of a medical professional, who diagnosed her twins with the condition. Prior to the diagnosis, Jesy did her best not compare them to other children their age as they were born premature, which she was instructed to do so by doctors.

At the time of posting the video where she explains her daughters’ condition, she said: “I’m not actually sure where to start with this video. A few months ago my mum noticed that the girls were not showing as much movement in their legs as they should be.”

She added: “It wasn’t really a concern to me at the time. From the minute I left NICU I was told, ‘Your babies are premature so don’t compare your babies to other babies. They won’t reach the same milestones just take them as they are.'”

She went on to explain: “It didn’t really ring alarm bells to me,” she said. “They are my first set of children and I was told not to compare to them. Health care visitors insisted everything was fine and the girls were healthy. There were a few signs later on that the girls were struggling to feed properly. We would take them to the GP and say, ‘Our babies are not feeding as frequently as they should.’ They said it was fine and to try little and often.”

“Long story short, after the most gruelling three to four months and endless appointments, the girls have been diagnosed with a severe disease called SMA type one. It stands for spinal muscular atrophy which affects every muscle in the body from legs, arms to swallowing,” she said.

“Over time it kills the muscles in the body. If it’s not treated in time, your baby’s life expectancy will not make it past the age of two.Once the girls got treated it was a very rapid process, time is of the essence with this disease.” Jesy tearfully explained.

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Source: Mirror