The Mirror features the heartbreaking condition SMA, which means the twins may never walk.
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Need to be aware
The Little Mix star explained that Spinal Muscular Atrophy has been identified in her children.
Jesy Nelson revealed her twins’ rare genetic condition(Image: @jesynelson/Instagram)
Everything you need to know about the heartbreaking condition SMA in Jesy Nelson’s twins…
Jesy Nelson, the ex-Little Mix star, has revealed that her twin daughters have a rare genetic condition that means they “probably never will walk.”
SMA causes delayed motor skills, breathing difficulties, and floppiness in the limbs. Every muscle in the body, from the legs to the arms, to breathing to swallowing, was said by her.
Jesy continued, “They have since had treatment, and I’m so grateful for it,” saying, “They will die if they don’t have it.”
Although there is no known treatment or cure for SMA, there are options for assisting people in achieving the best possible quality of life.
If one in 40 people has the disorder, which causes SMA, their parents may have a defective gene that causes the condition.
Prior to 2019, SMA type 1 babies frequently couldn’t reach their second birthday, and type 2 babies had never been able to walk, needing to have multiple surgeries and suffer from respiratory infections. Treatments that stop the disease in its tracks have been approved in the last five years.
Despite these approved treatments, testing must begin within a person’s first few weeks or even days. SMA testing is not done on British children because many times it is discovered too late. Campaigners and senior experts are urging that to change.
In Scotland, a two-year pilot program is scheduled to begin testing all babies in 2026. SMA UK’s Portia Thorman believes that introducing screening throughout the UK would be “ethically wrong.” You can be filled with hope, she says, “I believe you are now facing a diagnosis.”
After receiving a devastating diagnosis, Jesy Nelson told her twins that they would never walk again.
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Jesy Nelson, a pop star, revealed that the diagnosis of her newborn twins will make them unable to walk or regain their neck strength.
5 images to be viewed
In May, Jesy Nelson and her partner Zion Foster gave birth to twins.
Jesy Nelson has revealed the devastating diagnosis that her newborn twins have received just months after being born. In a social media video, the former Little Mix singer revealed her twins – Ocean Jade Nelson-Foster and Story Monroe Nelson-Foster – have been diagnosed with spinal muscular atrophy type 1 (SMA1).
The disease is a rare and severe genetic condition that affects muscle strength and movement, meaning some children will fail to walk and talk as they get older. In the video, a teary-eyed Jesy revealed the shock of the diagnosis, admitting she has become a “nurse” overnight to her twins.
While SMA is rare, experts say early diagnosis is crucial – and being aware of potential warning signs can help families seek support and treatment as quickly as possible. Here, we take a look at some of the early warning signs that can be hard to spot.
READ MORE: Influencer mum dead at 38 after £4,600 butt-lift and tragic final videoREAD MORE: Jesy Nelson’s twins pictured smiling with their breathing tubes in heartbreaking photo
Spinal muscular atrophy type 1: what is it?
The nerve cells responsible for controlling muscle movement are affected by spinal muscular atrophy (SMA), a genetic neuromuscular condition. The most severe type 1 disease, sometimes referred to as Werdnig-Hoffmann disease, typically strikes babies under six months of age.
The condition makes daily tasks like swallowing, lifting the head, and breathing more difficult because of progressive muscle weakness.
SMA is inherited when both parents carry defective genes, frequently without knowing it.
Early indicators that parents might notice
The earliest indications of SMA1 can be subtle at first, and they may be confused with general developmental delays, say doctors. Among the possible indicators are:
Floppiness or a lack of muscle mass (babies may feel strangely limp while being held)
holding their head up is challenging
Arm or leg movements that are weak or fewer.
Shallow breathing or breathing with the chest rather than the tummy
difficulty swallowing or feeding
A weary cry
SMA1-positive babies frequently fail to reach their intended motor milestones, such as rolling or pushing up when they are tummy time.
Why it’s important to get a diagnosis early
Medical professionals emphasize the importance of an early diagnosis. Some children with SMA have undergone a change in their outcomes in recent years, especially if they are treated as early as possible.
Jesy Nelson’s background
The 34-year-old singer and her musician fiancé Zion Foster, 27, welcomed daughters Ocean Jade and Story Monroe Nelson-Foster in May after a difficult pregnancy.
On Sunday the singer shared a video to Instagram to say her girls have the most severe form of the disease, which kills muscles in the body over time. Jesy had to stop herself from crying as she said: “I am grieving a life I thought I was going to have with my children.”
The former girlband star first visited her GP after her mother realized the twins weren’t moving as much as they should. Jesy claimed she told herself not to “compare” the babies to other babies of the same age because she had been warned that they would develop more slowly as they were premature. Jesy pushed for answers while the twins were battling with SMA Type 1 and her daughters were given the keys to feeding.
Jesy said in an Instagram update that she was unsure where to begin with the video. My mother noticed a few months ago that the girls’ legs weren’t moving as much as they should.
I didn’t really care about it at the time, I thought. Your babies are premature, so don’t compare your babies to other babies, I was told right away when I left the NICU. They simply accept them as they are, and they won’t achieve the same goals.
She said, “I didn’t really hear the alarm bells.” I was instructed not to compare them to my first set of children because they are my first. The girls’ health care providers reaffirmed that everything was alright and that the girls were healthy.
Later, there were some indications that the girls were having trouble consuming enough food. Our babies are not consuming as much food as they should, we would tell the doctor. They said it was fine and to give it a restless effort.
Continue reading the article.
Jesy has been informed that her twins may never walk or be able to regain their neck strength. Although there is no known treatment or cure for SMA, there are options for assisting people in achieving the best possible quality of life.
READ MORE: Jesy Nelson’s boyfriend Zion breaks silence with hopeful message and new photo of twins
Actress, Kate Beckinsale, has shared a heartfelt statement on Instagram after losing her beloved mother, Judy Loe, last year, telling fans ‘ grief is not a contest ‘
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Kate Beckinsale has shared a number of striking shots of herself while opening up about her heartbreak(Image: @katebeckinsale/Instagram)
Kate Beckinsale has shared a number of striking shots of herself while opening up about her heartbreak. The Hollywood star lost her beloved mum, Judy Loe, 78, last year, and admits she’s been ‘struggling’ ever since.
Taking to Instagram, the mum-of-one, 52, told fans “grief is not a contest” as she shared a slew of snaps in which she sports a white bikini top, frilly knickers, a black headband, gold nails and knee-high platform buckled black biker boots.
Captioning the shots taken in the Los Angeles sunshine on the beach and at her apartment, Kate wrote: “Grief is not a contest -whatever and whoever you have lost, your grief, your own grief is the worst grief. Don’t let anyone make you feel you’re in some kind of grief competition that’s just bulls**t.”
READ MORE: Influencer mum dead at 38 after £4,600 butt-lift and tragic final videoREAD MORE: Kate Beckinsale bursts into tears as she reveals sad reason behind weight loss
Stating “you cannot do it alone”, she added: “Grief needs a witness. You cannot do it alone. It will sometimes be the most surprising people who can even for five minutes sit with you in it”.
Going onto say that she has been surprised by the support she received, Kate continued: “When you are suffering, it is very often not the people you expected to be there for you who are.
” In actual fact it’s usually women who have suffered a tremendous loss, multiple losses, been raped, been abused, injured or betrayed by everyone in their lives who actually step in and try to carry some of your grief with you. “
It comes after Kate took to social media to slam those who had been making cruel comments about her weight.
The Underworld star pointed out that she has been mourning her mother’s death, which has compounded her grief toward her late father and stepfather.
Kate, who is the daughter of actor, Richard Beckinsale, said she has been struggling with eating since her stepdad, actor Roy Battersby, died in January 2024.
” It doesn’t make you feel very hungry, and I don’t know if there’s some sort of survivor’s guilt because it started after my stepdad died, “she said in an Instagram Reel addressing the comments about her body”. And it’s a kind of willpower thing, not anorexia, where you’re starving. Your body appears to have closed down. It’s shock and trauma, in my opinion.
The Serendipity star said she won’t turn into a “cruel piece of s**t that would say the things that a lot of you guys say to me despite her trauma.” She added, “She added, that she wouldn’t make” offensive remarks about other people’s appearances.
Continue reading the article.
Kate concluded, “It just wouldn’t cross my mind, and I am so grateful that people raised me like that. And I adore them a lot.
After revealing that her daughters Ocean Jade and Story Monroe have been diagnosed with a devastating genetic disease, the former Little Mix star said, “it’s been the most heartbreaking time of my life.”
7 Images to View
Jesy Nelson has eight-month-old twin babies(Image: jesynelson/Instagram)
Jesy Nelson has said doctors initially dismissed her fears for her eight-month-old twin babies before they were diagnosed with a severe form of a rare muscle wasting disease. The Little Mix star welcomed her daughters Ocean Jade and Story Monroe prematurely at 31 weeks with fiancé Zion Foster in May last year.
Jesy revealed to her followers over the weekend that her young daughters could pass away before turning two without receiving medical care. She claimed that her mother had previously told her not to compare their growth to other babies because they were born early because she had noticed they “weren’t showing as much movement.”
READ MORE: ‘My kids have same illness as Jesy Nelson’s twins, one will live a normal life’READ MORE: Jesy Nelson told her twin babies will never walk after devastating diagnosis
Jesy remarked, “A few months ago, my mother noticed that the girls weren’t moving their legs as much as they should be.” I wasn’t really concerned at the time because I was told from the beginning that “your babies are premature, so don’t compare your babies to other babies.”
They won’t accomplish the same goals, but they will continue to do so when necessary.
Despite Jesy’s concerns over their diet, the singer claims that health visitors also gave her some relief. The girls were described as “great and healthy,” according to them.
Ocean and Story were later found to have a severe muscular condition called SMA Type 1 after going through several months of tests. Great Ormond Street Hospital evaluated her daughters.
Jesy said on Sunday that her girls may never walk and that they may develop the most severe form of the disease, which eventually destroys the body’s muscles. As she said, “I am grieving a life I thought I was going to have with my children, I had to stop crying.”
SMA causes limb floppiness, breathing difficulties, swallowing, and motor skills that are delayed.
Jesy claims that her life has been turned around and that she is now treating her daughters to breathing aids and other chores that no mother should have to do.
We were told they would never be able to walk, Jesy said. They’d probably never be able to use their necks again. They will be disabled.
She continued, “The best thing we can do right now is to get them treated and hope for the best.” “I’m so grateful that the girls received the care they needed.” They would die if they didn’t have it.
Although there is no known treatment or cure for SMA, there are options for assisting people in achieving the best possible quality of life. If one in 40 children has a carrier gene for the condition, then the child is born with SMA.
Prior to 2019, SMA type 1 babies frequently couldn’t reach their second birthday, and type 2 babies had never been able to walk, needing to have multiple surgeries and suffer from respiratory infections. Treatments that stop the disease in its tracks have been approved in the last five years.
However, the tests must be started right away in life, or even within a few days. SMA testing is not done in UK babies because many times this diagnosis is late. Campaigners and senior experts are urging that to change.
Testing for all babies is due to begin in Scotland in 2026 under a two-year pilot programme. Portia Thorman, from SMA UK, believes it would be ”ethically wrong” not to introduce screening throughout the UK. “I think facing a diagnosis now, you can be filled with hope,” she says.
Jesy described how her life has changed in the past four months as “I am grieving a life I believed I was going to have with my kids.”
“It has become my second home,” I say. Within two weeks of receiving the diagnosis, I feel like I must start nursing. Nothing a mother should have to do to their child should have to do.
Because the last three months have been my life’s most heartbreaking experience, I made this video.
Jesy cried out, “I know I have to be grateful.” They are still present at the end of the day, which is their main goal. They have received treatment. My girls will fight the odds, and I firmly believe they will do so with the right assistance.”
Numerous famous people emailed her for support after posting her brave video. Chris Hughes, Jess’ ex-partner, once said, “A warrior Jess. Be gentle with yourself. Everyone is supporting you, so I’m sending my thoughts to you all.
Zion, Jesy’s partner, also shared his own hopeful message in a response to her proposal in September. The girls’ father, who claimed they were “smiling through the challenges,” shared a new photo of them. “Daddy loves you so much,” he continued.
After her girls were diagnosed with twin-to-twin transfusion syndrome (TTTS), Jesy had to go through a difficult pregnancy that required surgery. The NHS says that TTTS can have “grave consequences” for 10 to 15% of identical twins who share a placenta.
One twin has a larger blood volume than the other, which is caused by an abnormally connected blood vessel in the placenta, which causes an imbalanced blood flow between the two, leaving one with a larger blood volume.
Before giving birth to the twins prematurely at 31 weeks on May 15, the singer underwent an emergency procedure and spent 10 weeks in the hospital.
During her pregnancy, Jesy had also shared that her twins were monochorionic diamniotic (MCDA), meaning they share a single placenta but have their own separate sacs.
Continue reading the article.
Before the most recent health update, Jesy revealed she had previously recorded a six-part documentary about her pregnancy and what she called her “new chapter in her life.”
After revealing that her daughters Ocean Jade and Story Monroe have been diagnosed with a devastating genetic disease, the former Little Mix star said, “it’s been the most heartbreaking time of my life.”
7 Images to View
Jesy Nelson has eight-month-old twin babies(Image: jesynelson/Instagram)
Jesy Nelson has said doctors initially dismissed her fears for her eight-month-old twin babies before they were diagnosed with a severe form of a rare muscle wasting disease. The Little Mix star welcomed her daughters Ocean Jade and Story Monroe prematurely at 31 weeks with fiancé Zion Foster in May last year.
Jesy revealed to her followers over the weekend that her young daughters could pass away before turning two without receiving medical care. She claimed that her mother had previously told her not to compare their growth to other babies because they were born early because she had noticed they “weren’t showing as much movement.”
READ MORE: ‘My kids have same illness as Jesy Nelson’s twins, one will live a normal life’READ MORE: Jesy Nelson told her twin babies will never walk after devastating diagnosis
Jesy remarked, “A few months ago, my mother noticed that the girls weren’t moving their legs as much as they should be.” I wasn’t really concerned at the time because I was told from the beginning that “your babies are premature, so don’t compare your babies to other babies.”
They won’t accomplish the same goals, but they will continue to do so when necessary.
Despite Jesy’s concerns over their diet, the singer claims that health visitors also gave her some relief. The girls were described as “great and healthy,” according to them.
Ocean and Story were later found to have a severe muscular condition called SMA Type 1 after going through several months of tests. Great Ormond Street Hospital evaluated her daughters.
Jesy said on Sunday that her girls may never walk and that they may develop the most severe form of the disease, which eventually destroys the body’s muscles. As she said, “I am grieving a life I thought I was going to have with my children, I had to stop crying.”
SMA causes limb floppiness, breathing difficulties, swallowing, and motor skills that are delayed.
Jesy claims that her life has been turned around and that she is now treating her daughters to breathing aids and other chores that no mother should have to do.
We were told they would never be able to walk, Jesy said. They’d probably never be able to use their necks again. They will be disabled.
She continued, “The best thing we can do right now is to get them treated and hope for the best.” “I’m so grateful that the girls received the care they needed.” They would die if they didn’t have it.
Although there is no known treatment or cure for SMA, there are options for assisting people in achieving the best possible quality of life. If one in 40 children has a carrier gene for the condition, then the child is born with SMA.
Prior to 2019, SMA type 1 babies frequently couldn’t reach their second birthday, and type 2 babies had never been able to walk, needing to have multiple surgeries and suffer from respiratory infections. Treatments that stop the disease in its tracks have been approved in the last five years.
However, the tests must be started right away in life, or even within a few days. SMA testing is not done in UK babies because many times this diagnosis is late. Campaigners and senior experts are urging that to change.
Testing for all babies is due to begin in Scotland in 2026 under a two-year pilot programme. Portia Thorman, from SMA UK, believes it would be ”ethically wrong” not to introduce screening throughout the UK. “I think facing a diagnosis now, you can be filled with hope,” she says.
Jesy described how her life has changed in the past four months as “I am grieving a life I believed I was going to have with my kids.”
“It has become my second home,” I say. Within two weeks of receiving the diagnosis, I feel like I must start nursing. Nothing a mother should have to do to their child should have to do.
Because the last three months have been my life’s most heartbreaking experience, I made this video.
Jesy cried out, “I know I have to be grateful.” They are still present at the end of the day, which is their main goal. They have received treatment. My girls will fight the odds, and I firmly believe they will do so with the right assistance.”
Numerous famous people emailed her for support after posting her brave video. Chris Hughes, Jess’ ex-partner, once said, “A warrior Jess. Be gentle with yourself. Everyone is supporting you, so I’m sending my thoughts to you all.
Zion, Jesy’s partner, also shared his own hopeful message in a response to her proposal in September. The girls’ father, who claimed they were “smiling through the challenges,” shared a new photo of them. “Daddy loves you so much,” he continued.
After her girls were diagnosed with twin-to-twin transfusion syndrome (TTTS), Jesy had to go through a difficult pregnancy that required surgery. The NHS says that TTTS can have “grave consequences” for 10 to 15% of identical twins who share a placenta.
One twin has a larger blood volume than the other, which is caused by an abnormally connected blood vessel in the placenta, which causes an imbalanced blood flow between the two, leaving one with a larger blood volume.
Before giving birth to the twins prematurely at 31 weeks on May 15, the singer underwent an emergency procedure and spent 10 weeks in the hospital.
During her pregnancy, Jesy had also shared that her twins were monochorionic diamniotic (MCDA), meaning they share a single placenta but have their own separate sacs.
Continue reading the article.
Before the most recent health update, Jesy revealed she had previously recorded a six-part documentary about her pregnancy and what she called her “new chapter in her life.”
Influencer Yulia Burtseva, who tragically passed away at the age of 38 after undergoing a risky cosmetic surgery procedure at a private clinic in Moscow, has received numerous tributes.
A popular influencer has tragically died aged 38 after undergoing a butt lift cosmetic surgery procedure. Mum-of-one Yulia Burtseva, who was born in Russia but lived in Italy, suffered a sudden medical emergency shortly after receiving injections during a butt-lift (BBL) operation and could not be saved, Russian media reported.
Yulia, who has thousands of social media followers, shot a moving video just before her passing that showed her smiling and eating breakfast at Moscow’s plush Pushkin Café on Sunday. The day before the operation, which cost £4, 600, the “mumfluencer” had flown from Italy to the Russian capital where she resided with her Italian husband and young daughter.
READ MORE: Katie Price shows off huge new bum tattoo that leaves her in agonyREAD MORE: Jesy Nelson’s twins pictured smiling with their breathing tubes in heartbreaking photo
According to emergency service sources cited by Russian outlet MSK1, Yulia’s condition sharply deteriorated right away following the procedure, which was rumored to have been supposed to enlarge her buttocks.
According to reports, Yulia may have experienced anaphylactic shock before passing away quickly. The mother was taken to a hospital, but she was unable to be revived.
When news of the tragedy broke, Yulia’s fans flocked to social media, with many unable to comprehend what had happened, given the Russian’s recent Instagram Story. One asked “She was filming stories just hours ago — is this really true?” Another said: “Ten hours earlier she was smiling and happy. This is terrifying.”
Other fans questioned the risks of cosmetic procedures, with one saying, “Operations like this are simply not worth it. Her family is in deep sorrow.
The death has been the subject of a criminal investigation. According to a statement from the Moscow Investigative Committee, investigators are seizing documents at the scene. Numerous forensic examinations, including medical ones, have been mandated. According to MSK1, the clinic’s director could not be reached for comment.
Yulia was born in Samara, Russia, and moved to Italy where she wed Neapolitan-born Giuseppe about five years ago. She regularly posted videos about living in Italy, praising the country’s traditional family values, and sharing sweet photos of her husband, daughter, and mother-in-law on her blog.
She had previously disclosed her interest in medical tourism, including a trip to Turkey to get dental care, and how she promoted the company.
During a Brazilian butt-lift operation, a doctor transfers fat from the belly, hips, lower back, or thighs to the buttocks. The surgery carries significant risks, particularly the life-threatening complication of fat embolism, making it one of the more dangerous cosmetic procedures.
A lung artery blockade caused by fat embolism, which can cause respiratory distress or death.
